Family Day Out

Last Sunday on the 5th March, we decided to have a Family Day Out. This is the first day out after Adriana came out from the hospital. We would not want to do and go somewhere far as we did not want to stress her so we decided to go to Craft Complex in Kuala Lumpur. That day was the last day for Craft Exhibition for 2006.

We arrived there at 10am, and at that time not many people were there. We went around and to for things, the main intention was only looking but we end up, well Mama ended up buying blouse for herself, wrap around up skirt, kaftan for Tasya, traditional music instrument for Azrai(which by the way only lasted not more than 10 minutes), beg for mama and Ayah registered himself as a fan club for Klasik FM.

After that we then proceed our day out to do Batik Painting, Abang did the sea horse while Tasya chose butterfly. They did the colouring themselves with a little help from Ayah, Mama and a nice kakak there. Only Adik did not do anything because we do not want her tp paint herself rather than the batik that she supposed to do.

It ended up a very nice day for all of us. We enjoyed ourselves very much and to know that we don’t have to go far to really have a nice quality family time.

We almost lost her

Something bad happened to us last 2 week, Adriana was admitted to ICU in GIMC due to fit. It all happened on Tuesday 21st February 2006, Amli was at home at that time(Thank god for this-I do not want to think what happened if Adriana was at the sitter house). He called me at about 3.30pm saying that Adriana was not herself and he suspected that Adriana was having a fit. I told him this is quite impossible as she was fine in the morning. I asked Amli to check her body temperature.

Then at about 5pm, they came to BC to pick me up. The moment I saw her, I know something was wrong. She was not responding to her surrounding, I ran to Amli grabbed Adriana and rushed to the loo. I tried to bring down her temperature. When things were ok, we then rushed to GIMC. At the A&E department, they tried to help her by given her medication, she had another attack after the medication. The doctor said that she should not be having another fit, and suspected that this is not a normal seizure. They then decided to put her into ICU. When I heard ICU, I was like “what”, why ICU then the doctor said because she needs constant monitoring.

Then we went to ICU and inside there was even worse, she was not responding to anything, not to us and certainly not to the medication. She was unconscious, and the doctor has to increase the level of medication that they gave her. Seeing her like that break my heart, it was the most terrifying thing for me. I could not stand it anymore and I think the doctor sense this and asked both of us to stay outside and they will call us if anything happened. Once outside the ICU, I just broke down and cried, she was my baby and there is nothing I can do to help her. I could not talk to anybody, I just cried and cried and I smsed everybody that I know and asked them to pray for my baby.

Then the doctor called us and asked us about her history. Her paediatrician was good but she lacked of PR. She did not try to make us feel better but she made us feel like we are at fault. She kept asking about Adriana health and when we hesitated she sounded like we are not looking after her the way we should. Then, she gave us the worst case scenario, nothing is good and that made us felt even worse.

Adriana’s conditions at that time were bad, she was unconscious and not responding to anything even the dose of the medication. The doctor decided to increase the dosage, and it makes her condition worsen. I almost die when I saw her like that

At about 7.30pm, Fazz and his friend came and visit us, I saw him and broke down to tears-again. I cried when people came and visit us, Abg Kamal and Kak Nor, Ang Asrul & Kak Nani, My parents and my sister. I could not help it. My baby is ill.

She was in ICU for 3 days, the next day she was bit ok, and she responded to our voice. She opened her eyes and I was so happy. That day I was in much better spirited that the day before. Those who visited us that day could not believe that I was so strong and did not shed any tears. I told them this is because she is much better than yesterday. I told them if they came yesterday, I would definitely cry.

Adriana went so many test, all sorts of test; blood, head scan, etc. These are necessary to find out why she developed the seizure. She went for her EEG, MRI and lots of blood test. Pity her, her body was full of wires, she out from ICU on Thursday evening, even then she did not go to normal ward. Doctor put her in HDU, which means that more observation for her. Only on Friday that she was transferred on normal ward. After that it was ok with her, she eat well, and responded quite well with her surrounding.

Form her MRI doctor found out that one part of her brain called Myelin was abnormal, it was relatively small compared to her age. And that why she is slow in her development, she only started walking, and she still cannot talk. So, after this lots of therapies for her but at least we know about her condition earlier and we can help her.

This situation had taught me lots about myself, I know that I love my kids but this makes me realized that I will do anything for them and I cannot live without them. This also makes me feel close to my Creator, before this I sholat, without really talk to Him but during that time I really talk to him and I believed that He heard me and now I still continue my 5 times a day session with him. It also reminded myself that do not put thing on hold, if you want to do something do it NOW.

I glad that everything turn out ok with my baby, and I love my family even more after this.

Above is the picture of Adriana while she was in ICU, Amli insisted that I took that picture, probably the picture will be a reminder to us that we almost lose Adik and we better treasure every moment that we had with each other.